I often speak of how blessed I am, but probably not often enough. I have so much in life - stable jobs, a nice house, cars, an amazing husband and two totally healthy children.
Why am I telling you this? Well - Matt has a niece, Lisa Marie, who is a sweet 10 year old girl who lives in New York. She has been fighting a rare neurological disorder her entire short little life. It is called Alternating Hemiplegia of Childhood (AHC) and it causes seizures and temporary paralysis and there is no goverment funded research to help her or those affliced. There is no pharmaceutical company interested in developing medicine for her. There are no treatment plans to make life easier for her - or her family. There is no known cause or cure for AHC - YET!
Now through November 30th you can go to www.refresheverything.com and vote for this project to receive $250,000 in funding. It will go so far for a disorder that gets no aide currently! And it doesn't cost you a dime - just your time, once a day for the next 14 days - to go click a button and vote.
go to www.refresheverything.com and select “Browse Ideas and Vote” on lower right. In the search area, upper right, type AHC Foundation. You’ll see our idea and click gray “Vote for this idea” button.
As I post this - she is in 3rd place for her category of funding level. Only the top 2 get funding. PLEASE - vote for her and tell all your friends and family to as well!
You can vote EVERY DAY - and please do!!!
Tuesday, November 16, 2010
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